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Disputing Medical Data

By William Crawford in Health Policy

8 May 2009

John Halamka has posted a few thoughts from a meeting on dispute resolution in healthcare:

Life as a Healthcare CIO: Followup on Dispute Resolution

The key insight, which followed from the “ePatient Dave” data kerfuffle, is that we need to find a way to web-enable dispute resolution in healthcare. There’s not too much to add to that, except to reinforce that he’s absolutely right, and perhaps to suggest that it’s a broader issue than just PHR data disputes. In general, civilization benefits when we have more APIs to mediate our interactions with large, impersonal agencies. Two principles:

  1. Personal Health Record platforms, like Google Health and HealthVault, need to incorporate a dispute resolution workflow into their core APIs. This makes implementation a little harder, but it also removes one of the major objects institutions may have to sharing data with consumers by way of a PHR. The institution can implement the back-end portion of the dispute any way they want.
  2. Some percentage – unknown but likely high – of institution to PHR data exchanges will be flawed. Some percentage of those flawed transactions – unknown but likely low – will be caught by savvy patients. The rest will flow through and be discovered later, if at all. At the minimum, this means dispute resolution will have to be implemented for any data held in the PHR – allowing disputation at the time of data acquisition is insufficient. And as patient data is relied upon more widely, we’ll likely need more ways to validate its integrity.

If we can’t rely on the consumer to spot all the errors (and we can’t), automated tools may be able to fill a small part of the gap by looking for logical inconsistencies. This needs to be approached with care – too many unnecessary queries to hospitals will impose too much of a burden, and “Are you sureĀ  you have this? Because if you did you’d probably be dead.” is probably not a question that the average patient wants to be asked.

1 Response to Disputing Medical Data

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e-Patient Dave

May 9th, 2009 at 11:50 pm

e-Patient Dave “kerfuffle,” huh?? Is that what it was? :–) I wonder what the ICD-9 code for that is. Heh.

Seriously, though, as long as the world has thrust notoriety on me, due partly to my day-job work in data and web interfaces, I’ll mouth off about my comment on Dr. John’s blog http://is.gd/yjmv:

You know, it’s funny that this is called “dispute resolution” (in all industries), because it’s not always a dispute.

Example: When I don’t recognize an American Express charge, they don’t have a button for “Inquire,” or even a *process* for inquiries when I call in. All I wanna know is “What is this?” But they say I have to dispute it.

To me this is a semantic error that can heighten tensions in relationships. After all, the existence of five “disputes” on an account sounds quite different from five open inquiries.

I think it implies an unwitting arrogance on the part of the system people: “Of course we presume our system is right; we put a lot of thought into it. You disagree? Dispute us.”

And, interestingly, here we are again, faced with another example of what something SAYS it is, versus what is ACTUALLY is. Among us relative geeks we can understand those distinctions, but as we increasingly bring ordinary mortals into the discussion, the discipline of Customer Experience (another part of my day job) teaches “I don’t know what I said until I know what you heard.”

So, John, although I recognize that the discipline is currently called dispute resolution, perhaps you can help lead folks out of the dark ages by encouraging a more friendly – and accurate – term. Inquire, question, whatever – just something not restricted to suggesting being argumentative.

btw, for export, I like what HealthVault did: all imported info comes into a holding pen, where I can pick through it and choose what goes into my record. Love it. Wish I could do that in my day job!

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A group of people dedicated to figuring out clever ways to implement information technology in healthcare. It's written by William Crawford, Jon Abbett, Evan Pankey, Vineet Manohar and Steven Boscarine.

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